National Ataxia Foundation
About
The National Ataxia Foundation is a nonprofit devoted to improving the lives of people affected by ataxia through support, education and research. Its stated aim is to ensure that no one experiences ataxia alone, until no one experiences it at all. The organization shares research updates, practical resources and personal stories from people living with the condition, and it keeps the community informed on policy issues such as changing Medicaid requirements.
Much of its work happens through community. Support groups led by volunteer leaders meet in many regions, giving people with ataxia, caregivers and family members a place to connect and learn, and an Enhanced Support Program adds professional support to that network. Fundraisers such as the Xtreme Hike let supporters take on physical challenges for the cause, and the #KnowAtaxia campaign invites people to share their own stories on social media.
What to Know
- Membership is free and includes news on research opportunities for a member’s specific type of ataxia.
- Members get early access to free webinars.
- The foundation publishes an eNewsletter and a publication called Generations.
- Its resources include guidance for caregivers supporting a loved one with ataxia.
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